Recent Posts
- New mutation is linked with rare juvenile Batten disease: Case report
- Finding strength and resilience through the trials of Batten disease
- Finding the time: Caregivers must have respite amid the chaos
- NORD’s Patient Assistance Program helps cover Batten healthcare costs
- Embracing my son’s unique journey as a new school year begins
- Understanding the bigger picture of advocacy work
- Response to beeps may measure juvenile Batten disease progression
- The serene haven I imagine as a respite from rare disease
- Finding time to pursue my dreams as a mother and caregiver
- URBC now in Center of Excellence network for Batten disease