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Cristina Vargas has a strong educational foundation in paralegal studies and an outstanding record of writing as an advocate for rare diseases. Her professional background is focused on activism and legal work that have been boosted by her great writing techniques. At the age of five, her remarkable son Juju was diagnosed with CLN2 Batten disease. She is committed to making a difference in the lives of those impacted by rare diseases. She lives to motivate, uplift, and encourage others! Cristina genuinely enjoys writing and speaking out for causes.
As a parent of a child with late-infantile Batten (CLN2) disease, I’ve found it’s important to prioritize not only their physical care, but also their mental well-being. Coping with the challenges of this rare genetic disorder can…
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