Dear Juju, A few days ago, I opened the column I hadn’t finished writing. It was sitting on my computer exactly where I’d left it. I’d been writing about your tremors getting worse and your upcoming infusion. I wrote about how Dad and I were doing everything we could to…
Discussion
Children and adults with juvenile Batten disease face more emotional and behavioral issues and have a lower quality of life than their siblings without the inherited disorder, a new study from Norway has found. Moreover, parents of those with juvenile Batten, also known as CLN3 disease and marked by…
Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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