When I think about March, I think about transition. It’s not fully winter anymore, yet it’s not quite spring, either. The air shifts, yet the cold lingers. The sun shines a little longer, but the ground remains hard. March teaches us something powerful: that growth can begin before anyone sees…
Discussion
February is often associated with love: hearts in store windows, sweet messages exchanged between couples, and a reminder to cherish the people closest to us. For rare disease families like ours, February carries another meaning: Feb. 28 is Rare Disease Day. The entire month becomes a time when the…
Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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