February is often associated with love: hearts in store windows, sweet messages exchanged between couples, and a reminder to cherish the people closest to us. For rare disease families like ours, February carries another meaning: Feb. 28 is Rare Disease Day. The entire month becomes a time when the…
An international study mapped out a detailed timeline of how juvenile Batten disease — also known as CLN3 disease — typically appears and progresses, offering families and clinicians a clearer picture of the disease. When researchers compared the timing of all core disease symptoms, a clear pattern emerged:…
Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
Get regular updates to your inbox.
