Grief has seasons, but they do not arrive politely. Sometimes the weather, a familiar smell, or a calendar date cracks me open. Late this summer, it found me in aisles filled with backpacks, notebooks, and first-day outfits. For everyone else, back-to-school season meant a fresh beginning, but for me, it…
Discussion
Grief has taught me that loneliness isn’t always about being physically alone. I can be surrounded by my husband, my daughters, other family members, friends, and others who love me deeply, yet still feel an emptiness that no crowded room can touch. Since my son, Juju, gained his wings, I…
Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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