Newly diagnosed? Start your journey here.

Need to know

Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.

Personal experiences

It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.


There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.