Every Batten disease parent learns that time is the most valuable thing we have. We stop measuring life by birthdays and holidays and begin measuring it by the memories we can still make before the disease changes everything again. Every smile, laugh, and hug becomes priceless. No amount of…
Discussion
A study that found CLN7 disease, a form of Batten disease, may be more common in Latin America than in other parts of the world highlights the importance of global data, according to its authors. Differences in the types of Batten disease that are most common across regions “underscore…
Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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