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A Sept. 28 webinar, hosted by Xtalks, will explore the challenges of clinical research in pediatric rare disorders, along with strategies in decentralizing clinical trials to aid in recruiting and enrolling patients. Registration is required for the free hour-long webinar, titled “The Art of Decentralizing Pediatric…
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I have big news to share this month: I’m making a movie! If you regularly read my column, you’ll already know that in December, I’ll attempt to break a world record for the fastest blindfolded half-marathon. This effort, intended to honor the legacy of my late sister, Taylor, will…
Columnist Laura King Edwards will try to break a world record for the fastest blindfolded half-marathon to honor her late sister, Taylor.
Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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