There is something about May that feels like a quiet exhale. After months of gray skies, heavy coats, and long nights, the sun begins to linger a little longer. The air softens. The world slowly wakes back up. For a moment, everything feels a little lighter. As a rare…
Discussion
There is a moment that happens after every appointment, infusion, or procedure that people don’t see. From the outside, it may seem like the hardest part is over. The appointment may have gone well, or the treatment may be done. There may be a sense of relief, even if it’s…
Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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