There is a loneliness that comes with losing a child that words cannot explain. Since my son Juju gained his wings, the world has kept moving while part of my life has stopped. Some mornings, I forget for a few seconds, then reality returns and breaks my heart again. I’ve…
Discussion
A new 3D model of the retina, the light-sensitive tissue at the back of the eye, is helping researchers uncover how vision loss may begin in juvenile Batten disease, also known as CLN3 disease, while pointing to a potential therapeutic approach to protect vision. Using the model, researchers at…
Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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