The OrCam MyEye 2, a wearable device designed to help people with visual impairment navigate the world, may be a useful aid for children with juvenile Batten disease, though these patients often need help from their caregivers to use the device correctly, according to a small feasibility…
Discussion
When we talk about Batten disease, we often focus on what can be seen: the seizures, the regression, the loss of speech and vision. While these things should be acknowledged, the emotional weight shouldered by caregivers, which often goes unseen, also deserves to be discussed. Caregivers manage…
Becoming educated and informed about Batten disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your journey.
There is no cure for Batten disease yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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