Author Archives: Maria Joao Almeida

Recent Posts

• Taysha Approved in Canada for Trial Testing TSHA-118 for CLN1 Disease
• Rarebase Launches Collaborative Platform to Find New Therapies
• International Experts Develop Guidelines for CLN1 Management
• We Could All Stand to Be More Like Kids
• Foundation Helps Sponsor Drafting of Guidelines for Juvenile Batten
• 2 Scientists in Australia Awarded 2021 Batten Research Grants
• Cancer Therapy Tamoxifen May Hold Promise for 2 Batten Types
• CLN5 Gene Therapy Trial to Start Early Next Year in Rochester
• I’m Redefining What Giving My Best Means
• Rare Disease Groups in US Join in Plea for Care Across State Lines