12-year-old Spearheading $1 Million Research Fund-raiser for Sister with Batten Disease
The Beyond Batten Disease Foundation has started a Be A Hero campaign to raise $1 million and public awareness about the form of the disease that strikes youngsters. Craig and Charlotte Benson founded the organization in 2008 after doctors diagnosed their then-6-year-old daughter Christiane with juvenile Batten disease. Now 15,…