Searching for Balance in the Fight Against Batten Disease
In the terminal days of August, as summer made one last stand, I completed a couple of two-mile jogs on the streets of the South Carolina border town I’ve called home since 2016. I…
The Long Sprint
— Laura King Edwards
Laura King Edwards cofounded Taylor’s Tale, one of the leading forces in the fight against Batten disease. Her sister, Taylor, was diagnosed with CLN1 disease at age 7. Laura writes “The Long Sprint” to inform and inspire anyone affected by rare disease. She is a professional content writer and published author. Her memoir, “Run to the Light,” hit shelves in 2018. She is also a TEDx speaker and prolific runner. Laura earned an English degree from the University of North Carolina at Chapel Hill. A native of Charlotte, she lives with her husband and son in Fort Mill, South Carolina.
Featured Post
So long to ‘The Long Sprint,’ but not my fight against Batten disease
Since 2019, I’ve penned “The Long Sprint,” my Batten Disease News column dedicated to informing and inspiring people affected by rare disease. Now, nearly five years later, it’s time for me to…
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