COVID-19 and Batten Disease

Information About COVID-19

As the COVID-19 pandemic continues, Batten Disease News strives to cover various aspects of the virus and its impact on the patient community. Click the “Learn More” button for more information on COVID-19, including how it affects Batten disease patients. Scroll down to see some of our recent news stories and columns related to the pandemic.

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COVID-19 Perspectives

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    April 28, 2021 Columns by Laura King Edwards

    Running for a Greater Purpose
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    March 17, 2021 Columns by Laura King Edwards

    Soon I’ll Be Racing for Real Again
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    November 18, 2020 Columns by Laura King Edwards

    Giving Thanks, Despite Batten Disease
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    October 28, 2020 Columns by Laura King Edwards

    Batten Disease Changed Our Halloweens Long Before COVID-19
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    June 24, 2020 Columns by Laura King Edwards

    What Can COVID-19 Teach Us About Batten Disease?
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    September 23, 2020 Columns by Laura King Edwards

    Why the Fight Against Rare Disease Is Like High-stakes Soccer
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COVID-19 News

  1. April 22, 2021 News by Patricia Inácio, PhD

    Quick Approval Given COVID Vaccines Raise Concerns, Rare Disease Patients Say
  2. April 15, 2021 News by Patricia Inácio, PhD

    EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US
  3. February 11, 2021 News by Mary Chapman

    Pandemic Won’t Stop Rare Disease Day on Feb. 28
  4. January 27, 2021 News by Forest Ray PhD

    COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say
  5. November 26, 2020 News by Marta Figueiredo, PhD

    Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe
  6. May 29, 2020 News by Larry Luxner

    COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say
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