• Giving Thanks, Despite Batten Disease
  • Taysha, Invitae Partner on Rapid Genetic Testing for Lysosomal, Epileptic Disorders
  • NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits
  • Amicus Gene Therapy Effective After 2 Years in CLN6 Batten Children, Interim Results Show
  • UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner
  • Batten Disease Changed Our Halloweens Long Before COVID-19
  • Brineura Now Available Through NHS Scotland to Children With CLN2 Disease
  • Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say
  • CBD Treatment Found Effective for Severe Seizures in Batten Disease Case
  • Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos
  • First Report Published of Batten and Moyamoya Diseases Occurring in Same Patient
  • Amicus’ Gene Therapy for CLN6 Batten Given PRIME Status in Europe