Victoria Tan,  —

Recent Posts

• Excessive Microglia Activation May Underly Seizure Onset in CLN1
• A Father’s Ceaseless Stages of Loss After His Daughter’s Death
• NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26
• Supporters Set to Mark International Batten Disease Awareness Day
• New Study Highlights Emotional, Behavioral Challenges Due to Batten
• Sheep Chimera Study Points Up Role of Brain Inflammation in Batten
• 7 Ways My Sister, Taylor, Defied Batten Disease
• Seizures Were Only Symptom of Juvenile Batten in Girl, 13: Report
• BDSRA Webinar Focuses on Latest Treatments, Research
• Organizations Rally to Help Ukrainian Rare Disease Patients