Victoria Tan,  —

Recent Posts

• Early data support Regenxbio’s gene therapy program for CLN2 disease
• Changes in brain metabolites may be biomarkers for CLN3 disease
• Seizures in protracted CLN3 disease start later, delaying diagnosis: Study
• Grief fueling fury: What it means to fight Batten disease like a mother
• FDA approves Phase 3 trial design to test Batten-1 for juvenile Batten
• Study probes clinical variability from mutations in Batten-linked genes
• Virtual 5K event hopes to raise funds and awareness about Batten disease
• Lack of CLN3 harms the process of survival for cells under stress: Study
• Improvements for my migraines, but what about for Batten disease?
• T-shirt design contest opens for Batten disease awareness day