Victoria Tan,  —

Recent Posts

• Time should not be a luxury: A mother’s fight for justice
• Batten disease organizations prepare for June 9 awareness day
• Unbreakable: How I find strength as a parent even while I’m sick
• Our family’s fight for hope, treatment, and everyday joy
• Chest port for Brineura in CLN2 more stable than scalp-based device
• I won’t stop fighting for my son’s treatment — and his future
• Vacuolated lymphocytes help diagnose Batten in 7-year-old
• From aspiration to advocacy: A mother’s journey with CLN2 disease
• Why caregiver respite is crucial for rare disease parents
• Sex-specific sleep disturbances found in juvenile Batten mice