Victoria Tan,  —

Recent Posts

• Changing seasons brings precious moments of beauty
• Biotech companies partner on Batten disease gene therapy
• No days off: Living in the fire as a rare disease parent
• Personalized gene therapy benefits twins with juvenile Batten disease
• How parent caregivers can hold on through CLN2 disease progression
• Treatment with Batten-1 seen to slow vision loss in real-world study
• With my son’s CLN2 diagnosis, I fight more than the disease
• Time should not be a luxury: A mother’s fight for justice
• Batten disease organizations prepare for June 9 awareness day
• Unbreakable: How I find strength as a parent even while I’m sick