Victoria Tan,  —

Recent Posts

• Giving thanks for every milestone as a CLN2 Batten disease parent
• Brain abnormalities can vary by age, sex in juvenile Batten
• How Batten disease parents can drive change through advocacy
• How we celebrate Halloween with medically complex children
• Signs of early brain disruption prompt timely CLN3 gene therapy
• Changing seasons brings precious moments of beauty
• Biotech companies partner on Batten disease gene therapy
• No days off: Living in the fire as a rare disease parent
• Personalized gene therapy benefits twins with juvenile Batten disease
• How parent caregivers can hold on through CLN2 disease progression