Sarah Neidler,  —

Recent Posts

• From aspiration to advocacy: A mother’s journey with CLN2 disease
• Why caregiver respite is crucial for rare disease parents
• Sex-specific sleep disturbances found in juvenile Batten mice
• United for change: Advocating for greater rare disease awareness
• Gene therapy improves bowel function in Batten mouse model
• Hope and resilience: Parenting a child with CLN2 disease
• Communicating without words, even though we’d both like a chat
• Batten-1 may preserve vision with juvenile Batten disease: Scientists
• Embracing gratitude: Finding joy and resilience this Thanksgiving
• Rising up: Advocating for my son and the CLN2 community