Recent Posts
- 18-month data on juvenile Batten therapy shows positive efficacy
- Advice to parents of children with late-infantile Batten disease
- A letter to Juju, my 7-year-old son with Batten disease
- ‘Deprioritized’ gene therapy given as treatment for Batten disease
- So long to ‘The Long Sprint,’ but not my fight against Batten disease
- How a late-infantile Batten disease diagnosis led to advocacy
- Sortilin protein inhibition shows promise as Batten disease treatment
- CLN2 gene therapy shows safety, promising efficacy in monkey study
- Regenxbio halts gene therapy programs for late infantile Batten
- Strategies proposed for treating fear episodes in juvenile Batten disease