Recent Posts
- FDA OKs Brineura as treatment for Batten disease CLN2 in all ages
- Planning fun summer activities for our rare disease family
- Challenges children may face when growing up with a sick sibling
- Drinking acidified lab water leads to gains in late infantile Batten mice
- The importance of spreading awareness about Batten disease
- How to have a strong marriage in a rare disease family
- Supporters set to rally for Batten Disease Awareness Day on June 9
- How stability helps parents of children with chronic illness
- 18-month data on juvenile Batten therapy shows positive efficacy
- Advice to parents of children with late-infantile Batten disease