Batten disease took my sister from me, but it didn’t take her love for life. Now, more than two years…
Laura King Edwards
Laura King Edwards cofounded Taylor’s Tale, one of the leading forces in the fight against Batten disease. Her sister, Taylor, was diagnosed with CLN1 disease at age 7. Laura writes “The Long Sprint” to inform and inspire anyone affected by rare disease. She is a professional content writer and published author. Her memoir, “Run to the Light,” hit shelves in 2018. She is also a TEDx speaker and prolific runner. Laura earned an English degree from the University of North Carolina at Chapel Hill. A native of Charlotte, she lives with her husband and son in Fort Mill, South Carolina.
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Articles by Laura King Edwards
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