For most of us, January means a new beginning. For me, January 2022 also means a new left ankle —…
Articles by Laura King Edwards
This will be my fourth Christmas without my sister. Taylor lost her life to CLN1 disease (Batten disease) in…
I’ve run nearly 40 half marathons — two of them blindfolded — but zero marathons. This fact surprises a lot…
On a cool morning in Wyoming’s Teton Range late last month, I laced up a pair of dusty, well-worn boots…
U.S. distance runner Molly Seidel won a bronze medal in Tokyo this month, crossing the finish line…
Doctors, scientists, and patient organizations like Taylor’s Tale — the nonprofit I co-founded to advance breakthrough treatments…
I never ran track. Instead, I worked my legs on the soccer field, using my stamina to cover the pitch…
I’ve written a Batten disease column crammed with running metaphors since 2019, and a nonprofit blog…
At the end of March, I ran a real race for the first time in 16 months, traveling to the…
My sister, Taylor, was diagnosed with CLN1 disease on a hot summer day in 2006, during the “Dark Ages” of…