With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails…
Larry Luxner
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Articles by Larry Luxner
With an estimated 1.37 billion inhabitants, India will likely surpass China in five years as the world’s most populous country.
Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will suffer deeply if Britain leaves…
With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn screening, to vaccinations, gene therapies and…
The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government officials is planned for April 10–12…
About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city early next month for the…
G71.01 is, literally, the code for Duchenne muscular dystrophy.  Q93.51 stands for Angelman syndrome, and E75.4 covers neuronal…
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures — at exactly the same time…
#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range…
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced to seven years in federal prison…