KarryAnne Bellinger,  —

Recent Posts

• Batten-1 may preserve vision with juvenile Batten disease: Scientists
• Embracing gratitude: Finding joy and resilience this Thanksgiving
• Rising up: Advocating for my son and the CLN2 community
• New mutation is linked with rare juvenile Batten disease: Case report
• Finding strength and resilience through the trials of Batten disease
• Finding the time: Caregivers must have respite amid the chaos
• NORD’s Patient Assistance Program helps cover Batten healthcare costs
• Embracing my son’s unique journey as a new school year begins
• Understanding the bigger picture of advocacy work
• Response to beeps may measure juvenile Batten disease progression