Recent Posts
- Communicating without words, even though we’d both like a chat
- Batten-1 may preserve vision with juvenile Batten disease: Scientists
- Embracing gratitude: Finding joy and resilience this Thanksgiving
- Rising up: Advocating for my son and the CLN2 community
- New mutation is linked with rare juvenile Batten disease: Case report
- Finding strength and resilience through the trials of Batten disease
- Finding the time: Caregivers must have respite amid the chaos
- NORD’s Patient Assistance Program helps cover Batten healthcare costs
- Embracing my son’s unique journey as a new school year begins
- Understanding the bigger picture of advocacy work