Diana Campelo Delgado,  —

The Batten Disease Support and Research Association (BDSRA) Australia has announced the winners of the 2020 Batten disease research grant program in Australia and New Zealand. The purpose of the program is to support research in disease mechanisms, novel therapies, improvements in diagnosis, and treatment and disease management in Batten…

Sanford Research scientist Kevin Francis, PhD, has received an $83,718 research grant to study CLN6 Batten disease — also known as variant late infantile CLN6 disease — and advance Anavex’s compounds to early trials. The funding was awarded by the Charlotte and Gwenyth Gray Foundation, a family…

Neurogene has enrolled the first patient in a natural history study of CLN5 and CLN7 disease, two forms of late-infantile Batten disease, the company announced. The study (NCT03822650), which is still recruiting, is being led by Jonathan Mink, MD, PhD, director of the University of Rochester Batten Disease…