A letter to Juju, my 7-year-old son with Batten disease
My dear Juju, Just as a butterfly is inspired by the beauty of a flower, I am inspired by you, my son. Your strength and resilience, despite the challenges you face from late-infantile…
A Mother's Dream to Rise Above — Cristina Vargas
Cristina Vargas has a strong educational foundation in paralegal studies and an outstanding record of writing as an advocate for rare diseases. Her professional background is focused on activism and legal work that have been boosted by her great writing techniques. At the age of five, her remarkable son Juju was diagnosed with CLN2 Batten disease. She is committed to making a difference in the lives of those impacted by rare diseases. She lives to motivate, uplift, and encourage others! Cristina genuinely enjoys writing and speaking out for causes.
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With my son’s CLN2 diagnosis, I fight more than the disease
When my son, JuJu, was diagnosed with CLN2 Batten disease, our entire world shattered in a moment. But I didn’t expect that we’d be forced to fight not just a devastating illness, but…
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